All ETDs from UAB

Advisory Committee Chair

Donna J Slovensky

Advisory Committee Members

Gerald L Glandon

Herman R Foushee

Frank F Ferris

Document Type

Dissertation

Date of Award

2010

Degree Name by School

Doctor of Philosophy (PhD) School of Health Professions

Abstract

The aim of this study was to develop and translate a psychometrically valid and reliable, population-based, needs assessment instrument, the PCNA-EAV, to measure the health care and support needs of patients with advanced cancer. The cross-sectional study design combined qualitative and quantitative methods, to test instrument reliability and validity, and to examine the association between sample characteristics and health care and support needs. The 116-item, PCNA-EAV, comprised 10 domains of need: physical/functional; social; psychological/emotional; information; communication; helpful resources; financial; religious/spiritual; priority of need; and preference for care The target population was all cancer patients in the department of oncology at King Abdulaziz Medical City-Riyadh (KAMC-R), Saudi Arabia. The survey was conducted in three stages: pretest, pilot and retest, using a purposive sampling technique to recruit pretest and pilot subjects. Retest subjects were all participants in the pilot phase, who consented to be re-interviewed. Results for estimates of reliability and validity were mixed. Eight of the 16 PCNA-EAV scale and subscale estimates of reliability (Cronbach's alpha) were acceptable to excellent, ranging from α = 0.70 to α = 0.91. Test-retest reliability showed 11 of the 16 scales reliable over time (p =>.05), ranging from r(9) =.44, p =.17, to r(9) =.12, p =.72. Face and content validity were demonstrated, through expert panel review. P-values for the test for convergent validity are not significant (p.05); however, the trend indicates a positive association between variables, overall. This study extends existing work on cross-cultural instrument translation, adaptation, and validation. Further research is required, using multiple sites, and a larger sample size, to psychometrically validate the instrument, which has the potential to be a useful measure for use in Arabic-speaking, Islamic cultures.

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